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Autism Diagnosis Education Project

In 2008, Ohio House Bill 119 established the creation of the Autism Diagnosis Education Pilot Project (ADEPP) within the Ohio Department of Health, Bureau of Early Intervention Services to educate families, health care professionals, educators, and others interested in screening and diagnosis of autism spectrum disorders. The pilot project was subsequently administered by the Ohio Chapter of the American Academy of Pediatrics in five counties: Warren, Belmont, Wood, Franklin, and Cuyahoga.

After successful results in the five pilot counties, the project expanded in 2010 to include an additional 26 counties.  Initial funding ended in June 2011, but was renewed in September 2012, and the project was renamed the Autism Diagnosis Education Project (ADEP).  Under the direction and administration of OCALI and Akron Children’s Hospital/Family Child Learning Center, 20 additional counties joined the effort in 2013, bringing the total number of currently participating counties to 47.

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Video Transcript:

Kim Osburn: I can’t imagine going all the way through his early childhood and middle childhood not knowing what’s going on.

Narrator:  When it comes to autism, data from the Centers for Disease Control suggests the average American family has a two-and-a-half year gap from first concern about their child to diagnosis.  Two-and-a-half-years.

Because of Ohio’s Autism Diagnosis Education Project, Kim and Tim Osburn didn’t have that wait.  Just four months after concern about Connor, the Osburn’s had a local autism diagnosis in Greene County, Ohio.
 
Kim Osburn: We would have missed out on that had it not been for the ADEP program.

The Autism Diagnosis Education Project trains local teams to evaluate children suspected of having autism, using the latest internationally renowned evidence-based tools and teaching methods.

John Martin: Having something local is absolutely critical.

Mary Ann Campbell: They appreciate that it’s here locally, that they don’t have to wait 3-6, in some cases a year or more, to get into a clinic, they can get an answer faster.

Jennifer Montague: If we didn’t have that answer, I would feel, I wouldn’t know where to go.  

John Duby: I think it’s a huge impact to be able to offer to a family a service they can rely on knowing that it’s well done, it’s comprehensive, it’s standardized across the state.

Jennifer Montague: We can provide parents with a faster response and we can get the children into the therapeutic programs that they need to be in.

Narrator: With more than 200 Ohio cases that show a significant decrease in wait time and increase in parental satisfaction.
 
John Martin: To me it is a great model, seems like it could be replicated in other places.

Tim Osburn: It’s a miracle…just from where he was to where he is.

Kim Osburn: More and more kids need this intervention, they need this diagnosis so parents have the tools they need to help their children.