OCALI Pass | Login

FASD Research and Resources

Centers for Disease Control and Prevention (CDC)

Prevention education, physician protocols and surgeon general report. CDC has more than 100 free Health-e-Cards (or "electronic greeting cards") to send to friends, family, and co-workers! Two of the newest eCards relate to alcohol and pregnancy!

http://www.cdc.gov/ncbddd/fas

Fetal Alcohol Exposure and the Brain

An overview of fetal alcohol exposure from the National Institute on Alcohol Abuse and Alcoholism.

http://pubs.niaaa.nih.gov/publications/aa50.htm

Fetal Alcohol Spectrum Disorders Center for Excellence - Rockville, Maryland

The FASD Center for Excellence website is more focused on physicians and allied health professionals however it provides general information on FAS, upcoming events and trainings, descriptions of available resources, as well as links to other organizations.

http://www.fasdcenter.samhsa.gov/index.cfm

Fetal Alcohol Syndrome Consultation Education and Training Service Inc.

The Fetal Alcohol Syndrome Consultation Education and Training Service Inc. is a non- profit organization that deals with prevention of FAS. They serve as a resource to parents and professionals and provide community education, professional development, and consultation services.

http://www.fascets.org/

FASD and the Justice System

Many children with FASD experiencing secondary disabilities often have trouble with the law.

http://fasdjustice.on.ca/

Minnesota Organization on Fetal Alcohol Syndrome

The Minnesota Organization on Fetal Alcohol Syndrome provides important information on FAS including support services for families. They also list prevention tools and educational resources for professionals, as well as a national directory with FAS contacts in every state.

http://www.mofas.org/

National Library of Medicine's FAS Page

A service provided by the NIH lists all recent research advances in FAS as well as facts and figures on the prevalence of FAS. They also provide links to multiple FAS related services.

http://www.nlm.nih.gov/medlineplus/fetalalcoholsyndrome.html

NOFAS

The National Organization on Fetal Alcohol Syndrome (NOFAS) is the leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community. Founded in 1990, NOFAS is the only international non-profit organization committed solely to FASD primary prevention, advocacy and support.

http://www.nofas.org/default.aspx

ROOTS & WINGS Adoption - Fetal Alcohol Syndrome

A guide to FAS targeted at adoptive parents. The website includes medical needs, characteristics of FAS, including behavior and education abnormalities, and its need for advocacy. The website seeks to inform adoptive parents how to cope with their FAS affected child and offer resources to help improve the quality of their lives.

http://www.adopting.org/rwfas.html

State Resources for Families of Children with Disabilities

A guide to benefits, supports & services for families raising children with mental retardation and related developmental disabilities

http://www.thearc.org/NetCommunity/Page.aspx?&pid=1400&srcid=214

University of Washington School of Medicine: Fetal Alcohol and Drug Unit - Seattle, Washington

University of Washington School of Medicine created a Fetal Alcohol and Drug Unit through the Department of Psychiatry and Behavioral Sciences. Their website includes recent research advancements, resources on FAS, as well as legal and policy information dealing with FAS.

http://depts.washington.edu/fadu/

FASD Books/DVD’s/Videos

Fetal Alcohol Syndrome, Fetal Alcohol Effects: Strategies for Professionals
Diane Malbin
Hazeldon Educational Materials, 1993

Fantastic Antone Succeeds: Experiences in Educating Children with Fetal Alcohol Syndrome
Judith Kleinfeld and Siobhan Wescott
University of Alaska Press, Fairbanks, AK, 1993

Recovering Hope: Mothers Speak Out About Fetal Alcohol Spectrum Disorders tells the poignant story of women who used alcohol during pregnancy, and the effects this had on their children. The experiences these women share are supported by expert clinicians and researchers who talk about the various disabilities associated with FASD, and the evaluation and intervention services that are available. 60 Min, DVD. http://ncadi.samhsa.gov/

Recognizing and Managing Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects: A Guidebook
Brenda McCreight
Child Welfare League of American, 1997

Understanding the Occurrence of Secondary Disabilities in Clients with Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE)
A.P. Streissguth, H.M. Barr, J. Kogan, F.L. Bookstein
University of Washington School of Medicine, 1996