How to cope when a loved one with a developmental disability experiences mental health or behavioral issues
This resources developed by professionals, parents and advocates in New Jersey provides families with service and treatment information and practical tips so that they can more effectively advocate for their loved one during a behavioral crisis as well as planning for their future. While system information in this guide addresses services in New Jersey, it also identifies the roles of the many professionals families may encounter, describes the types of medications that may be helpful, and provides support learning to advocate for appropriate services for their family member.
The website One Place for Special Needs has compiled web-based resources for families, educators and adults with disabilities who are interested in learning to drive. These weblinks include resources compiled previously and shared on the site. The first: The Driving Guide includes links to information ranging from Adaptive Driving and Driving with Autism to Traumatic Brain Injury and Driving. Driving Basics includes the addition of links to free videos that on many facets of driving from becoming familiar with your vehicle to a guide for mirror adjustments and instruction on driving defensively.
Developed by the Institute for Community Inclusion, this booklet
Young people and their families are in the best position to make choices about working when they have good information about the impact of work on benefits. The purpose of this booklet is to give families and professionals working with young people some practical, hands-on information about work incentives.
Rethink Autism has made this helpful video available to show strategies for help prepare your child for the holidays. Take a look and see if some of these strategies can help your child navigate the many gatherings with new people and new activities that the holiday brings. Rethink Autism uses the video to introduce their parent-focused video-based lessons for teaching children with autism.
This link to an article on the website of PACER's National Bullying Prevention Center provides vital information to parents and educators about the likelihood of bullying for children with disabilities, the effect of bullying, and resources and strategies to that can be used to stop bullying. The site also provides additional resources to address the issue of bullying in the school environment
With the beginning of school, it is helpful for us to look at school from the perspective of the children and youth that school is designed to educate. This letter from a student with autism identifies some of the "messages" educators need as a reminder as a new school year begins.
Parents work hard to arrange residential supports ad services for their adult children with disabilities. This article by the Ohio Legal Rights Service provides important information on the Individual Options (IO) Waiver, explaining the Adult Family LIving Services provisions under the waiver. For those who have been grandfathered to allow them to continue accessing Home/Personal Care Services, it also identifies situations when that service agreement might changes.
Students with disabilities make up 70% of students who are subject to restraint and seclusion in schools. Often these children are between the ages of 6 and 10 years of age. Parents of children with disabilities whose exhibit challenging behavior have reason to be concerned because restraint and seclusion can have serious consequences and there is no evidence to support that it is effective in reducing problem behavior.
The U.S. Department of Education has issued a new publication on Restraint and Seclusion: Resource Document. It outlines 15 principles for educators, parents, school districts and others to consider when developing policies and procedures to support positive behavioral interventions and avoid the use of restraint and seclusion. The goal is to make sure that schools are safe and healthy environments where all students can learn, develop and participate in programs that promote high levels of academic achievement.
If your child's behavior is a concern, help your district take a proactive approach in adopting the 15 principles and educating school personnel to prevent the need for the use of an ineffective and potentially dangerous response to challenging behavior.
Learning the social rules is a complex task and it can be a challenge for children with special needs including those with autism spectrum disorders. This blog provides a resources for parents and educators by identifying a wide variety of activities to help children learn to read social cues. This particular article list twelve specific activities that parents can engage in with their children to help them prepare for navigating the social world along with links to additional resources to explore specific types of activities. The more we can engage with children in ways that are fun, the more easily they will be able to master the many nuances of successful social interaction.
This link will provide a wealth of information and resources for parents concerned about their child being bullied, and for parents who are concerned because their child is the bully. The site includes resources for Parents, for Educator, and for Students. You won't feel helpless when you see the resources collected here. The site provides links to video, including segments from the movie Bully. The websiteis result of the work of the National Center for Learning Disabilities, AbilityPath, PACER's National Bullying Prevention Center, and Autism Speaks. Find strategies, tools and books to help address the serious issue of bullying.
Parents who's children are bullied are very concerned and want to protect their children, but they don't know how. Schools have a legal responsibility to protect all children in schools and legal responsibility specifically to prevent bullying, but they often don't know how to address this very serious issues. There is a now a government resource that provides guidances to parents and to schools. It offers resources on prevention and responding to bullying when it occurs. If you're concerned about bullying, make sure you're armed with this information on bullying.
Universal Design for Learning (UDL) is a concept that guides educators in reducing barriers some students face in achieving academic success. This article from the National Center for Learning Disabilities, introduces parents to the concept and provides guidance for all parents in advocating for child's access to fuller educational experience.
To find out about how OCALI supports Universal Design for Learning, check out this UDL Webinar.
More than 2.5 million grandparents find themselves raising their grandchildren. In addition, many of these grandparents find themselves facing the challenges of raising child with a disability and they are seeking resources to support their child's special education and health care needs. This website is a great resource. AARP had joined with several collaborators to create a web resource for these "grand families" called GrandFacts. This page includes a number of helpful links including a Grand Families Guide. It also includes a feature that allows grandparents to identify resources specific to the state they live in. If you are a grandparent and have questions about your role or would like to connect with others in the same situation, check out this AARP webpage:
This website provides an excellent service for families and service providers. Dawn Villarreal, the writer and owner of the site, scours the landscape to identify resources on particular topics relevant to the daily lives of those living with the challenges of disability. She does in-depth searching and creates a targeted resource list on specific topics like this one on toilet training. After you've reviewed this resource, check out the list of topics on the One Place for Special Needs home page. It will keep you checking back regularly to see what has been added.
Complete Guide to Special Needs Toilet Training
Dan Coulter provides a terrific resource for families and professionals through his website. Coulter Vides was started after Dan's son, Drew, was diagnosed with Asperger Syndrome. They have focused on creating programs designed to help Drew and others like him succeed in school, work, relationships, and life. Their programs offer practical advice that they have gained through their family's experiences and through research and interviews. They are a family-owned video publishing company specializing in programs to help people with Asperger Syndrome and autism and those who support them. They have years of experience in television production, first-hand knowledge of Asperger Syndrome, and a broad understanding of autism spectrum conditions.
In their article "Practical Praise, Motivation, and Self Control" Dan offers guidance to parents and teachers on motivating children with Asperger Syndrome and other spectrum disorders. I like his concept of "Practical Praise" targeting those behaviors that are important for success in school and in the community. The idea of helping these children learn to "re-think" their view of mistakes is an important one too. I hope you enjoy this resource and please check out others available on Dan Coulter's website.
Check out his article Practical Praise, Motivation, and Self Control by clicking here.
Donna's Favorites is a weekly series of recommended resources geared towards the needs of families. Selections are made by Donna Owens, who leads the work in the OCALI Family Center. The views and opinions expressed in these resources are solely those of the resource author and do not represent the views or opinions of the Family Center and/or OCALI.