Traumatic Brain Injury (TBI) Resources
TBI Government Agencies
Centers for Disease Control and Prevention (CDC)
The CDC is one of the 13 major operating components of the Department of Health and Human Services (HHS), the principal agency in the U.S. government for protecting the health and safety of all Americans and for providing essential human services, especially for people who are least able to help themselves. The CDC has established an Autism Information Center that reports on CDC-funded state and federal projects as well as resources for families and researchers.
[ Victimization of Persons with Traumatic Brain Injury or Other Disabilities: A Fact Sheet for Friends and Families ]
National Dissemination Center for Children with Disabilities
The National Dissemination Center (NICHCY) serves as a central source of information via e-mail, publications, and links to research materials, projects, and Web-sites on IDEA, the nation's special education law, No Child Left Behind as it relates to children with disabilities, and research-based information on effective educational practices.
National Institute of Mental Health (NIMH)
The NIMH is involved in strategic planning and priority-setting for the National Institute of Health as whole as well as for specific research areas. NIMH solicits input from patients and their advocates, scientists, Congress, the public, as well as the National Advisory Mental Health Council.
Office of Special Education and Rehabilitative Services (OSERS)
OSERS is committed to improving results and outcomes for people with disabilities of all ages. In supporting President Bush's No Child Left Behind agenda and the New Freedom Initiative, OSERS provides a wide array of supports to parents and individuals, school districts, and states in three main areas: special education, vocational rehabilitation, and research.
Office of Special Education Programs (OSEP)
OSEP is dedicated to improving results for infants, toddlers, children, and youth with disabilities, ages birth through 21, by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers.
TBI Local and State Resources
Akron’s Children’s Hospital Head Injury Clinic
Akron’s Children’s Hospital Head Injury Clinic has a Comprehensive Traumatic Brain Injury Program that is dedicated to the service of patients of TBI and their families. This program provides care for children with TBI and their families, including follow-up care following discharge from the hospital.
[ https://www.akronchildrens.org/cms/site/c037295d8518935b/index.html ]
Brain Injury Association of Ohio (BIOH)
Brain Injury Association of Ohio (BIOH) is a statewide advocacy and education organization established to improve services and supports to Ohioans with brain injury and their families, and to promote prevention. BIAOH is comprised of survivors, family members, friends, and professionals working together to promote better understanding, rehabilitation opportunities, and lifelong community supports to assist individuals in living as fully and independently as possible.
Columbus Children's Hospital - Center for Injury and Policy (CIRP)
Columbus Children's Hospital - Center for Injury and Policy (CIRP) works at the local, state, national, and international levels to reduce death and disability caused by injury. The center conducts research, education, advocacy, and promotes advances in clinical care – http://www.columbuschildrens.com. Search REHABILITATION or call (614) 722-3230.
Ohio Department of Job and Family Services (ODJFS)
The Ohio Department of Job and Family Services (ODJFS) develops and oversees programs that provide health care, employment and economic assistance, child support, and services to families and children. The programs and services are designed to help Ohioans be healthy and safe, while gaining and maintaining independence. They are delivered at the local level in a manner that recognizes and preserves individual rights, responsibilities and dignity.
Ohio Valley Center for Brain Injury Prevention and Rehabilitation (OVC)
The Ohio Valley Center for Brain Injury Prevention and Rehabilitation (OVC) conducts research, provides education and develops programs to improve the quality of life of persons who experience traumatic brain injury. The center serves individuals, families, and professionals.
The Ohio State University Brain Injury Rehabilitation Program
The Ohio State University Brain Injury Rehabilitation Program is a nationally recognized brain injury rehabilitation program providing a wide range of inpatient services in its freestanding facility and outpatient services throughout central Ohio to help individuals regain lost skills and learn to compensate for those skills they are unable to recover. Dodd Hall is a leader in brain trauma rehabilitation and a pioneer in developing new methods to restore independence, enhance quality of life and shorten hospital stays for persons who have been disabled. The OSU programs meet the needs of individuals with a wide variety of brain injuries. For more information on the program visit the Brain Injury Rehabilitation Program website or call 614-293-3800.
[ http://medicalcenter.osu.edu/patientcare/hospitalsandservices/programs/services/?ID=219 ]
TBI National Resources
Brain Injury Association of America (BIAUSA)
Brain Injury Association of America (BIAUSA) encompasses a national network of more than 40 chartered state affiliates across the country, as well as hundreds of local chapters and support groups. BIAUSA provides comprehensive education about brain injury to audiences as diverse as physicians, rehabilitation specialists, trial lawyers, and educators. Conferences such as the National Symposium and the Public Policy Conference, as well as state and local seminars, feature best practices in the field presented by leading experts.
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Telephone: 703.761.0750; 800.444.6443
Email: FamilyHelpline@biausa.org (Family Helpline)
National Association of State Head Injury Administrators (NASHIA)
NASHIA’s mission is to formulate and influence through collective action sound national head injury policy and to assist state government-administered head injury programs in developing and implementing state and local prevention, rehabilitation, and community support services programs and policies for persons with traumatic head injury and their families.
TBI Parent Support
Brain Injury Association of America (BIAUSA)
Brain Injury Association of America (BIAUSA) encompasses a national network of more than 40 chartered state affiliates across the country, as well as hundreds of local chapters and support groups. BIAUSA provides comprehensive education about brain injury to audiences as diverse as physicians, rehabilitation specialists, trial lawyers, and educators. Conferences such as the National Symposium and the Public Policy Conference, as well as state and local seminars, feature best practices in the field presented by leading experts.
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Telephone: 703.761.0750; 800.444.6443
Email: FamilyHelpline@biausa.org (Family Helpline)
Brain Injury Partners: Navigating the School System
This new website offers resources for parents to help them advocate for educational service for their child by the project Brain Injury Partners: Advocacy Skills for Parents project developed by the Oregon Center for Applied Science, Inc.. The site includes a free tutorial for parents on how to advocate for their child's educational services. The tutorial includes: a guide for setting goals and tracking progress, a way for parents to identify their communication and negotiation styles and the opportunity for parents to assess their knowledge by watching other parents put these skills in practices.
Center for Neuro Skills
Bakersfield, CA
2658 Mt. Vernon Ave.
Bakersfield, CA 93306
Telephone: 800.922.4994; 661.872.3408
Email: Bakersfield@neuroskills.com
Los Angeles, CA
16542 Ventura Blvd. #500
Encino, CA 91436
Telephone: 800.992.6752; 181.783.3800
Email: losangeles@neuroskills.com
Irving, TX
1320 W. Walnut Hill
Irving, TX 75038
Telephone: 800.554.5448; 972.580.8500
Email: texas@neuroskliis.com
Emergency Medical Services for Children—National Resource Center
111 Michigan Avenue N.W.
Washington, DC 20010
Telephone: 202.884.4927
Email: information@emscnrc.com
Epilepsy Foundation-National Office
4351 Garden City Drive, Suite 500
Landover, MD 20785-7223
Telephone: 301.459.3700; 800.332.1000
Family Caregiver Alliance
180 Montgomery St., Suite 1100
San Francisco, CA 94104
Telephone: 415.434.3388; 800.445.8106
Email: info@caregiver.org
Family Voices
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
Telephone: 505.872.4774; 888.835.5669
Email: kidshealth@familyvoices.org
Head Injury Hotline
212 Pioneer Building
Seattle, WA 98104-2221
Telephone: 206.621.8558
Email: brain@headinjury.com
National Resource Center for Traumatic Brain Injury (NRC TBI)
Department of Physical Medicine and Rehabilitation
P.O. Box 980542
Richmond, VA 23298-0542
Telephone: 804.828.9055
E-mail: mbking@hsc.vcu.edu
TBI Professional Groups
American Occupational Therapy Association (AOTA)
AOTA is the nationally recognized professional association of occupational therapists, occupational therapy assistants, and students of occupational therapy.
American Speech-Language-Hearing Association (ASHA)
ASHA is the professional, scientific, and credentialing association for more than 123,000 members and affiliates who are speech-language pathologists, audiologists, and speech, language, and hearing scientists in the United States and internationally.
Association of Persons with Severe Handicaps (TASH)
TASH is an international, not-for-profit, association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.
Council for Exceptional Children
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, including students with disabilities and the gifted.
Division on Developmental Disabilities (DDD)
The Division on Developmental Disabilities (DDD) is a division of the Council on Exceptional Children (CEC). This professional organization includes educators, therapists, direct service providers, paraeducators, family members, and others providing a full range of supports, services, and accommodations to individuals with cognitive disabilities/mental retardation, autism, and related disabilities in educational, community living, and employment environments.
National Association of State Head Injury Administrators (NASHIA)
NASHIA’s mission is to formulate and influence through collective action sound national head injury policy and to assist state government-administered head injury programs in developing and implementing state and local prevention, rehabilitation, and community support services programs and policies for persons with traumatic head injury and their families.
TBI Resources
