SB Books

Another Way to Go by Marlene Lutkenhoff, RN, MSN

It’s tough when kids go to school and see that other kids go to the bathroom differently than they do. This book can help children make that transition from home to school a little easier. Contact the Spina Bifida Resource Center at (800) 621-3141 to order a copy of this book. The publication is free of charge; however there is a $4.00 shipping and handling fee.

Children With Spina Bifida: A Parent's Guide (The Special Needs Collection) by Marlene Lutkenhoff (Editor) Woodbine House; 1st edition (November 1999)

Each chapter closes with insights from other parents. The chapters deal with issues parents will face, from prenatal diagnosis to adulthood, including alegal issues, education, health concerns, treatments, therapies, and causes. The extensive resource guide at the back of the book is remarkable, and is by itself well worth the cost of the book.

Living with Spina Bifida: A Guide for Families and Professionals (Paperback) by Adrian Sandler M.D., 1997; Woodbine House; ISBN: 0933149867

Sandler has written a valuable handbook that addresses patients’ biopsychosocial and developmental needs from birth through adolescence and into adulthood. Sandler’s holistic approach encourages families to focus more on the child and less on the disability while providing abundant information about this condition. Parents of children with spina bifida add their personal insights in several chapters. Included are a glossary, a list of spina bifida associations, and suggested readings.

Teaching the Student With Spina Bifida by Fern L. Rowley-Kelly, Donald H. Reigel (Editor), 1992; Paul H Brookes Pub Co; ISBN: 1557660646

This is a resource that can help teachers and other school personnel create an inclusive classroom.

Hydrocephalus : A Guide for Patients, Families, and Friends (Patient-Centered Guides) by Chuck Toporek, Kellie Robinson, Linda Lamb (Editor), 1999; O'Reilly & Associates; ISBN: 156592410X

This book educates families so they can select a skilled neurosurgeon, understand treatments, participate in care, know what symptoms need attention, discover where to turn for support, keep records needed for follow-up treatments, and make wise lifestyle choices. Stories from dozens of people with SB and their families are woven throughout.

Bookstores

http://www.specialneeds.com - Books, videos, DVDs and related items about mental and physical disabilities for parents, professionals, educators, family members and persons with a disability.

http://www.woodbinehouse.com – A source for books on disabilities.

http://brooklinebooks.com – Reader-friendly and informative educational literature.